Yesterday, I was a stranger unto my mother, for most, if not all of our visit. We sang and talked of old times, but there was a strong feeling that much of her conversation was just bluffing, and trying to be congenial...she would have acted much the same no matter who was leading her in talk and song. She is snowballing toward catatonia, and all I can do is watch.
Last week, I spoke gently to one of the girls about calling her "McGoo" This week, the girl over-emphasized (you know, too much, too sweet), "I love you, DORIS!" as she left the room, no angle at the head of mom's bed, no pillows at her knees, mom started at the sudden yell, that I knew was done for my benefit. I was really nice about my talk, too. Told them if it made my mom laugh to call everybody "McGoo," then, by all means, continue it, as there is not enough laughter in this world. But they took offense...I should have known...
I wore my sunglasses into the nursing home to shield my migraine eyes from the light and took them off in Mom's room. I walked Jan to her car, came back & they were gone. I know darn well the sassy little aide has them, but was too weary to make an issue out of it. Sweet janitor kid, Dustin & I tore apart the room looking for them, my mother so confused at what we were doing & looking for...I saw the little aide in the hall getting into an isolation gown on my defeated trudge out & she stopped me to "look at my angel wing necklace." She is "giving one just like it to her mother who is dying of cancer, except hers has a diamond in the tip..." she was trying to deflect guilt...I did not feel up to accusations and denials. I just wanted to go home.
Earlier, our favorite nurse had come in while we were waiting for this aide to come and lay Mom down. Norma lay down on Mom's bed for a minute or two, with tears in her eyes. She told us that she had spent the previous night changing her dying husband's medication from Oxycontin over to Morophine, and that it was no easy task, and finally when she left for work this morning his pain was a 3, which was great news to her. End stage cancer. Pre stage Catatonia. And my mother's room mate shied away from our hugs and greetings for the first time, as did Faye, across the hall. And Rita, the bilateral amputee who is very much together in her head, has just lost her second room mate this year. Depression and withdrawal, abounding with the harvest, depending on how and where you look.
It was a tough day. I cried myself to sleep last night, and when I woke up at 6:30 AM, & could not get back to sleep, I found myself crying again. This does not help a migraine that has been flirting with me the better part of a week, so I am venting, and then, trying to move on.
OOOh Dear God in Heaven! It is so hard! Here is that pain in my heart back again as if it had never begun to heal. Well. I have vented. I cannot dwell. What to do? I know it is contributing to the pounding in my head. I'd go for a drive & waste gas, but that's self defeating. Thursday, I just ran from my sister's car to my MD's office to get some medication they were holding for me & ran back & my head thundered from the minor exertion. You are dog-gone if you do, & dog-gone, if you don't.( I will call my dogs in here to comfort me, maybe!)
At Jan's interview, they asked her what she would do if Mom died, and Jan was on shift or scheduled to come into work that next morning. Jan told me that she got tears in her eyes and said "I honestly do not know what I would do." I did not tell her that I though they worded the question kindly...it would be more accurate to inquire "What will you do when your mom dies, if you are working here?" Because if Jan gets the job, the rest is inevitable...we never know what we will do, except, I will think I will grieve deeply, and then, try to be busy...and pray, not fall prey to yet another debilitating migraine.
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thank you for sharing...
I am sorry about your headaches. curious - have you ever looked into diet as a way of handling migraines?
It must be difficult to watch your mother decline.... My mom died in 2000... it was difficult watching her loose control of her life from the cancer.
ron
Lordy girl - that is a rough one - and I can't recall if you said your Mother was at piece with dying and all she is going through - I know when they aren't it is so bad as fear controls their attitude.
Anyway - I will pray and ask Father to spare you any new heartaches while you try and master the old ones. I always get a headache when I cry - but try something with a bit of caffine in it - as it is supposed to help.
God bless you and keep your comforted and His word on your lips for share your feelings with others - you are a blessing in disguise to many because of your courage in showing us how to get through these hard times.
Thanks for your concern & kind words...your encouragement & understanding...this battle is not even 1/2 fought, though...I will appreciate it if you can stick around every now & then. My blogstream friends helped me a lot through the long loss of my father...I am hoping they will be here for me for my mother's final journey as well.
I have other things in my life...I will try not to be all gloom and doom...I will certainly try.
How fortunate elderly people and their loved ones are when they just die quietly in their sleep or expire suddenly with a heart attack. Lingering for months on end with pain and suffering is extremely difficult for all involved.
I am sure you do have other things in your life BUT you write about what you NEED to write about right now. There will be days when you just might feel something else being more predominant and then you will write about that. Do NOT EVER feel like you need to apologize or make excuses for what your posts sound like. There are those of us that are here no matter what.
Take care of you as much as possible!
Ya' know, if I cannot receive email from blogstream, do you guys get email from blogstream when I answer your comments? I wonder? I upgraded my membership & will raise a ruckus when we get a new server to try & reinstate getting mail from blogstream...
Anyway, Lookin, yeah, this is a rough one, so close on the tails of losing my daddy a little over a year ago. I will never get over missing him until I am with him again...
Yes, when we used to share deep and thoughtful mother and daughter conversations, Mom had come to know a certain peace with the expectation of "crossing over into the light" to be with God, to see her mother and her daddy, and her beloved aunts and friends...to be One with the Light. Those thoughts are long gone from who she is now, I think...she is child-like...reading printed words aloud over and over with great satisfaction, not even necessarily looking to be condoned, it's just, like me, she has always loved to read...I think...
I have stayed away from my blog a few days...it was just too painful...I cannot & will not stress the gloomy aspects of my life for long, as I enjoy many a blessing in so many other facets of my life. Friday was just a sudden realization of what we had been looking at all along, and just not admitting to ourselves.
I doubt that I am anyone's model adult child. But your words are kind and inspirational, and I do thank you kindly...I will try to be worthy of them.
Caffeine is a cause and a cure for headaches...Azron has suggested a gluten free diet...my brother, Larry, insists I need a dairy-free diet...it is only by the Grace of God, that I was able to start and maintain an alcohol free diet in 2001. Being with Bubba is great inspiration for being drug & alcohol free, as he has been so all of his life...for the 1st 7 years we were together I drank as I pleased...he has never forced me to stop or warned me or anything like that...one day, I just knew my behavior was not worthy of him...or me.
My headache are less (believe it or not) than they were before menopause (somebody told me last week that if I'd have a baby, I'd never have another migraine, but I'm 56, that ship has sailed!. I really just think that these are the cards that God has dealt me-and my hand could have been so much worse...indeed, in my past, it most certainly was.
I will stay with my mom as much as I can. I will tolerate as much sorrow as I can. I will pester the nursing staff, when I see fit & they will have their petty vengences & that's no big deal. The sunglasses came from the salvage yard where Bubba works part time, now that he is retired, and they had already been glued once. My sisters & I will disagree on her care (Kathy wants a tight perm, I want her hair to be left to grow naturally), and her decline ("she is just tired" vs she is fast approaching catatonia)...the staff is not taking "no" for an answer lately...taking her to Jazzercize & social events, but I have worked in nursing homes...when the "No!" start to become insistent & are accompanied by crying fits, you cannot force a patient to do something that she does not want to do, and they will soon have to let her do what she wants to do, and all she wants to do, is sleep.
It will be OK, Lookin'. She will "cross over" in her sleep. She is not in pain (Daddy was in pain-the Morphine could not come fast enough). We still have some time, and God will take her home in her sleep. We should all be so lucky, really. But still, it is so very, very, very hard.
Stick around for me some, would ya' Lookn'? Every now and then? And say those prayers? I have had the toughest time with prayers these last couple of years. I just do not know what to say...
I wear my heart on my sleeve...I could not shut up if I wanted to! But I do enjoy so much about so much of my life...my dogs, my sisters, my brothers, my friends, and of course, the love of my life, Bubba. His mother suffers from Alzheimer's, as well, but in the earlier stages...she calls 4 or 5 or 6 times a day, like my folks used to do...you never thought you'd miss THOSE days, but I do now, oh boy, I'd nab 'em back in a heart beat.
But I loved doing my "Eye Spy" & tripping around the Stream visiting other blogs..I love laughter, when I can get it. We all do.
Thanks honey-pie, we shall see, what we shall see, what will be will be, I gotta take a break, and take a walk with a dog or two, maybe even all three. My mother always told me that I "suffered beautifully," and I have obviously, yet to lose the knack!
Email notifications have been messed up all weekend - but seem to be working now - if you have AOL - as a lot of us do - I think it was their problem - as I went in and deleted a lot of my obsolete saved stuff and that helped. But the blog stream server is almost shot and that is why a new one is so needed.
As far as NOT knowing what to say when you are praying - I have always loved Psalm 193 (it's my favorite) as it shows me that God knows what is on my tongue and in my heart before I even speak - Someday there just isn't words for my feelings and I just ask the Lord to examine my heart and know what I am trying to say - and you know what - I truly feel Him doing just that. I know it sounds funny but it is as if an exray machine warms my whole body and afterwards I feel so calm. I know He has been there and He gives me what I need. I will post it here so you can read it for yourself. I think you will see in these words His power and that you just have to trust Him to deal with and show you how to deal with your problems now.
Lean on Him Cher - He is so strong when we are weak - I know - that it will help. My prayers to your and yours - Here is the Psalm 139. - And may God's blessings cover you completely at this time & Always.
Psalm 139
1 O LORD, you have searched me
and you know me.
2 You know when I sit and when I rise;
you perceive my thoughts from afar.
3 You discern my going out and my lying down;
you are familiar with all my ways.
4 Before a word is on my tongue
you know it completely, O LORD.
5 You hem me in—behind and before;
you have laid your hand upon me.
6 Such knowledge is too wonderful for me,
too lofty for me to attain.
7 Where can I go from your Spirit?
Where can I flee from your presence?
8 If I go up to the heavens, you are there;
if I make my bed in the depths, [a] you are there.
9 If I rise on the wings of the dawn,
if I settle on the far side of the sea,
10 even there your hand will guide me,
your right hand will hold me fast.
11 If I say, "Surely the darkness will hide me
and the light become night around me,"
12 even the darkness will not be dark to you;
the night will shine like the day,
for darkness is as light to you.
13 For you created my inmost being;
you knit me together in my mother's womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
16 your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.
17 How precious to [b] me are your thoughts, O God!
How vast is the sum of them!
18 Were I to count them,
they would outnumber the grains of sand.
When I awake,
I am still with you.
19 If only you would slay the wicked, O God!
Away from me, you bloodthirsty men!
20 They speak of you with evil intent;
your adversaries misuse your name.
21 Do I not hate those who hate you, O LORD,
and abhor those who rise up against you?
22 I have nothing but hatred for them;
I count them my enemies.
23 Search me, O God, and know my heart;
test me and know my anxious thoughts.
24 See if there is any offensive way in me,
and lead me in the way everlasting.
Keep the faith - God is always there - Listen
"Be still and Know that I am God" - Listen - you will hear
Lookin -
I know this will make you cry - but it might also - give you loving thoughts of your Dad - Come see my video on my posting - (it will take a minute to load - but worth the wait) lol
It reminds me of my Dad "waiting on a woman" as he is gone and my Mother is still alive.
Love ya -
Elias
I remember when my grandfather was 'checking out' he begged my father, uncle, brother, AND me ... "to take his gun and shoot him"
I won't go so far as to say I believe in "helping someone to die,"
but it gives....
"sucide - while experiencing a terminal illness" ...... meaning
I wish the best for your mother and you
ice